Update on my Levi

[mommomrebecca]

Hello everyone,
My baby is not well. He needs thoughts, prayers, whatever you do. I'm taking a short break from the icu , but am on my way back. He seemed better, got way lethargic and unresponsive. We took him into another doc who said he was fine. We found another doc who said the same thing. We looked for a third and by the time we got there he was VERY sick. He was almost in a coma. They told us we were JUST in time to save him. They are running tests and treating the dehydration and say he will pull out fine, but we are just beside ourselves in grief and pain. This is our boy. We cannot live without him. I know you Mamas understand.

[pmcgary]

Oh my! Glad you kept seeking out doctors!!! Sending healing vibes your way....Do keep us posted when you get a free second!!! (Ha free second what is that?!)

[lifetapestry]

Rebecca,

Saying a Mishebeirach for Levi now,

Karla

[CraftyMommaOf2]

Oh, honey! I'm with Pam! Good for you for not just taking their word for it when you knew something was wrong with your baby. I'll be thinking about him. :om

[pamelamama]

oh Rebecca!!! We're with you love! :hug

[Ruth]

:hug thinking of you. hope he's better soon, love to the rest of the family too.

[jmo]

I'm so glad you kept going to doctors and he's getting the care he needs now. Please keep us updated.

[Sabrina]

Oh, Rebecca :hug
I am so glad he got help when he did and that you trusted your mama instincts. Please let us know how he's doing and we'll be thinking of all of you.

[Quinlonsma]

Keep trusting your instincts even while in the hospital. Remember NO ONE knows that little boy the way YOU do. You are the EXPERT here.

We will keep your family in our hearts and prayers till you let us know he's home and giving you a run for your $$ again ;)

[cassdarrow]

Hugs for you, Mama. BTDT, no fun!

[twouglyducks]

I'm sorry he's not well, but so glad you listened to your instincts. I hope he's up and running in no time. Prayers going up.

[Meredith]

Oh Rebecca... we will add little Levi to our prayers tonight.

[imonion]

Rebecca, I'm praying for you. How horrible I'm so glad you found a good doctor at last .

[Susan_WW]

Oh Rebecca! I'm saying prayers for Levi :hug

[averymybaby]

Ugh. ICU is no fun. :( I hope you can stay close by every minute. Saying a little prayer for you.

[knittingnana]

Hope he is feeling better soon! :grouphug

[CheekyMamaof2]

my family and I have you and yours in our prayers Rebecca!
Wishing you the best...

[radish]

oh mama, i am so sorry - i will add your family to my prayers. keep us posted when you can.

[BethyM99]

Oh honey.. is there anything we can do???

[mamaofthreeboys]

Oh dear! We are including him and your family in our prayers starting right away..... :mwah What a blessing that you are close to home & can be with him. May God heal him and make him strong ! ! !

[CraftyMommaOf2]

Oh honey.. is there anything we can do???

yes, pls let us know!

[mamapez]

Levi is most definitely in my thoughts. :hug

[Nada]

Yes, please let us know if there is anything we can do. :(

My thoughts are with you and your family. :hug

Nada

[mhurst]

You and your family are in our prayers. :hug

[botannie]

Oh dear, poor little Levi. You guys are in my thoughts. Take care and if there's anything we can do, by all means, just ask :hug

Malama Pono,
Annie

[Aurora]

:hug You and your sweet Levi are in my thoughts and prayers.

[pamelamama]

Any news?

[CraftyMommaOf2]

I was just coming to ask the same thing.

[mommomrebecca]

Levi is improving! He was allowed a pass for a few hours, and is happily nursing at the keyboard. We are hoping to go home for good maybe tuesday morning. They are saying he had a virus, but it was dehydration that was so dangerous. He is much happier now without machines and wires for a few hours. We are all so tired and just grateful that he is alive. What a horrifying experience. For those who want to know, he was passing all the hydration skin tests as well as focus tests and wetting and tearing up, but was still life-threateningly dehydrated. So the lesson is, don't always listen to standardized tests and doctors who don't see your baby every day and listen to your Mama gut. :mwah

[BethyM99]

Oh mama!! Thank God he is doing better. Thank you for taking the time to do an update. Please give our love to that sweet baby boy. I'm so glad he's with his mom!

[pamelamama]

what a relief! and thank goodness that you got the help you needed for little Levi !

[jmo]

I'm so glad to hear Levi is doing so much better! Thank you for letting us know he's recovering.

[mamaofthreeboys]

Oh what a relief that he is doing better praise God :mwah
We will continue to keep him and your family in our prayers :pink

[CraftyMommaOf2]

Oh, honey!!! That's wonderful news that he's on the mend! I have to admit, I was crying about your babe last night. :bag I know how terrifying it is to know that your child may not survive. Not trying to be a downer, just letting you know I know how that feels. :hug
So happy for you!!! :love

[Susan_WW]

Oh Rebecca! I'm so glad he's doing beter! :hug Hoping he'll come home soon for good!!!

[Susan_WW]

Oh Rebecca! I'm so glad he's doing beter! :hug Hoping he'll come home soon for good!!!

[Aurora]

OH! I am so very glad he is doing better. :hug 's and I'll continue to keep you all in my prayers. :mwah

[averymybaby]

:bighug

[nyllek]

Rebecca,
I am so glad to hear he is improving. You must have been scared out of your mind. Good for you for finding a doctor to listen to you. :hug

[abigailvr]

I missed this thread when you first posted it! So glad to hear he's doing better!

[mommomrebecca]

http://www.polakoff.com/gallery/albums/7monts/Levi.jpg


Here's my trooper on our pass home on Saturday. It was a mistake, he got worse. His stomach has been damaged from the constant severe cramping diarrhea and they have taken him off breastmilk for a few days to try and let his stomach heal. It's just not absorbing any nutrients, which is why he got dehydrated without the i.v. for a few hours. :emb Anyway, he is staying in good spirits and maybe will be released by the end of the week. He has learned the drop game and has managed to unscrew the i.v. and start sucking the contents, and is saying a few words now. He also turned 7 months and has gained a couple pounds back. :pink They are now saying he had the flu, without a fever, so watch your babies this winter! The flu sucks :pezfrog

[Susan_WW]

My prayers that he will recover quickly :hug

[imonion]

oh rebecca, what a little dolly! i'm gld to hear e's doing better but will continue to pray he heals quickly and can come home soon.

[Quinlonsma]

It's amazing how babies seem to do fine anywhere. My guy didn't really mind the hospital a bit but Daddy and I were definately worse for the wear.

[Aurora]

He is so beautiful! I continue to keep you all in my prayers. :bighug

[knittingnana]

:grouphug He is adorable! Hope he will be able to come home soon. You are in my thoughts! take care.
:knit :wool

[BethyM99]

Oh honey, I just read your update. What a cutie, Hang in there and listen to your docs. He looks good in the picture, so I hope that he's feeling like himself soon and ready to come home.

Keep us updated. :grouphug

[CraftyMommaOf2]

:bighug he is beautiful! have you thought of anything we can do?

[averymybaby]

what a trooper! he looks cheery enough for all he's been through. i'm glad he's on the mend. you must be just about at your wit's end, eh? you holding up ok?

on the iv.. i feel wierd saying this but felt i should mention - baby veins are very fragile and having an IV in them constantly can lead to "IV burn" - have they changed the hand they have the IV in yet? My dd got IV burn after only a week in NICU after she was born and needed the attention of a plastic surgeon (!) to make sure it healed correctly. She's got a scar there but it could have been much worse. Just something to keep an eye on. :bighug

[mommomrebecca]

Thanks everyone :mwah I really am at my wit's end! Making me stop nursing him is one of the most depressing things of my whole life. I hope I can start again soon. This is so scary and horrible, I can't imagine what it would be like for you who had preemies in the hospital for months :emb

Julia- I will keep an eye out for that, thanks for the tip. Unfortunately, his veins keep collapsing and they have to move the i.v. to a new vein. The last one took an hour of trying :goodgrief He screams uncontrollably whenever a nurse enters the room, it's just so sad :emb

We are doing o.k. otherwise. We have great family support thankfully. My Eleanor is having a very hard time though. She misses him and is so worried, they are very close.

Please just keep telling me to hang in there, I feel like I'm losing my energy and my mind.

[pamelamama]

oh honey!! :hug Your children are lucky to have such a dedicated loving mother. Hang in there!

[BethyM99]

Oh sweetie, hang in there. It is so hard to see our little ones not feeling well, Having an IV set is such a hard thing as a mom. We continue to pray for Levi's healing and that he'll be able to come home and get well enough to nurse soon.

:grouphug:

[mamapez]

Oh no! I'm so sorry to hear that. Poor baby. :hug for you and little Levi. I'm glad that he is doing better, and hope that he continues to heal so he can come home. Hang in there. :mwah I will be thinking of Levi and your family.

[dandelions2]

I'm so sorry for all that poor Levi has been through. My kids and dh just got over the flu and they didn't have fevers either. I hope he's home and feeling all better soon.

[averymybaby]

This is for you and Eleanor:

:mwah :mwah :mwah :mwah :mwah :mwah :mwah :mwah :mwah :mwah :mwah :mwah :mwah

:bighug :bighug :bighug :bighug :bighug :bighug :bighug :bighug :bighug :bighug :bighug :bighug

[Susan_WW]

:hug I hope he continually feels better and gets to come home soon!!!

[marnie]

i hope things continue to improve for you.

just out of curiosity, and for (hopefully never needed) future reference: did they say why formula was ok for him but breast milk wasn't?

[ravingcutie]

<huge hugs> Hang in there Rebecca! You are doing a great job. I know it is so stressful, but you will make it through. You all are in our prayers!

[BethyM99]

i hope things continue to improve for you.

just out of curiosity, and for (hopefully never needed) future reference: did they say why formula was ok for him but breast milk wasn't?

I could be mistaken, but I got the impression he was getting IV nutrition and probably nothing orally? I know when Jacob was dehydrated, he didn't take anything by mouth for a few days.

It's awful to see your baby feeling yucky, I hope he is so much better soon.!

[gorzong]

Oh, I'm so sorry you are going through this! I somehow managed to miss this thread before. I went hunting for it when I saw your post on the other one to me. I hope he continues to get better. You are such an awesome mama fighting for him and knowing something was really wrong. So sad that big sis misses him.

Awww. :mwah

Holli

[Shifra73]

Poor sweet baby Levi. Hugs and prayers for all of you and may he have a speedy recovery!